Happy Riboflavin Transporter Deficiency Awareness Month! To celebrate, I invited my friend, fellow author, and fellow RTD warrior Paige Snedeker to share with us how she has come to know God better through her RTD journey. As Paige says, “Living with a rare disorder comes with its own set of pain, obstacles, and challenges. It is in these very experiences that I recognize and appreciate the beauty of God’s power and protection.” Thank you for sharing, Paige!
Mightier Than the Storm
Mightier than the thunders of many waters, mightier than the waves of the sea, the LORD on high is mighty!
Psalm 93:4 (ESV)1
Daily walks in the sunshine are something I delight in. Over the summer, a tropical storm system covered Florida with constant rain. Then one day, we checked the weather and the forecast showed clear skies! Praise the Lord! I was so excited to be outside for a walk again! The weather was beautiful, with only a few gentle breezes from the tail end of the recent storm.
Suddenly, the wind blew hard against my face, and I looked up at the sky. Dark, angry clouds were building in the distance. Despite my limited eyesight, I could still make out the approaching danger. The forecast didn’t call for a storm, but who knows with Florida’s unpredictable weather? My care team encouraged me to turn back, but in my stubbornness, I forged ahead! I was tired of missing my adventures, and a little wind and dark clouds weren’t going to stop me.
Just a minute later, my team heard the first rumble of thunder and insisted I head back. They were right to be afraid. A downpour could short-circuit my electric wheelchair and, even more dangerously, my ventilator. My care team sprang into action, flipping my power wheelchair into top gear. I was completely helpless as the skies opened up over us. We were still three minutes from the closest tree cover and fifteen minutes from home as the wind and rain intensified!
By God’s grace and protection, my equipment wasn’t damaged. My mom arrived and got me safely into our van. After I got home, I reflected on the events of the day. I was amazed by the power of the Lord and how He protected me during what I believe was a mini tornado. I’ve escaped many thunderstorms before, but never anything quite so mighty! Yet, the Lord is mightier!
God is more powerful than the fiercest storm and can do what our human minds might consider impossible. Even with all I’ve learned about Him and experienced with and for Him, I continue to draw closer to the Lord. Life brings me countless trials and challenges, but with each one, I have the opportunity to know God better. This experience, however, felt different. In the midst of the storm, I could sense the spiritual warfare waging around me.
To some, what I endured may seem like a simple inconvenience. However, living with a rare disorder comes with its own set of pain, obstacles, and challenges. It is in these very experiences that I recognize and appreciate the beauty of God’s power and protection. I saw it in the rain, felt it in the wind, and knew it in the way He brought me safely home.
Keep in mind, dear readers, there will be times in your life when you may not recognize God’s presence in every moment. But He is there! Even in the middle of your wildest storms, He is present, He is protecting you, and He is mightier than anything you may face.
About Paige
Paige Snedeker, founder of The Paige Project, is an artist, a speaker, and an author. She has a rare neuromuscular degenerative disorder known as RTD (Riboflavin Transporter Deficiency Type 2). During her childhood years, Paige was slowly rendered legally blind, Deaf, and mostly immobile. Through the degradation of her body and the immense difficulties faced, she found freedom in Jesus Christ and longs to share that same hope with those whose lives are affected by disability. Paige’s desire is to support and minister to the disability-afflicted and offer hope in overcoming adversities through the power of the gospel, her art, and her story.
To experience more of Paige’s inspiring story, check out her award-winning memoir, Paige’s Pages: A Story of God’s Strength in Impossible Circumstances. I (Megan) highly recommend it!
- Scripture quotations are from the ESV® Bible (The Holy Bible, English Standard Version®), © 2001 by Crossway, a publishing ministry of Good News Publishers. ESV Text Edition: 2025. The ESV text may not be quoted in any publication made available to the public by a Creative Commons license. The ESV may not be translated in whole or in part into any other language. Used by permission. All rights reserved. ↩︎
